Public lecture: Quality of life and self-management of HIV

Posted by Kimberley Meijers on October 19, 2016 at 10:34 am

The Education and International Development research group (IS Academy)/ Governance of Inclusive Development (GID) warmly welcomes you to a public lecture on Finding meaning: self-management of HIV and quality of life among people taking antiretroviral therapy in Uganda” by Dr. Steve Russell (School of International Development, University of East Anglia, UK). Please see invitation flyer attached.

Why might a group of people living with HIV in Uganda, who are taking treatment and self-managing the condition, report higher quality of life than a community control group from the same community?  In this seminar Dr. Steve Russell will first present these counter-intuitive quantitative data, then focus on themes from qualitative illness narrative data also collected for the study which help explain why PLWH might be reporting higher levels of wellbeing. These findings about improved wellbeing and sense of agency among a group of marginalised people link to broader concepts of empowerment and inclusive development. Steve will also present parts of a documentary film and address themes such as access to health services, building positive relationships with health workers and peers, managing the illness, and new purpose and meaning in life after starting treatment.

Date and time: November 8, 2016 from 15.15-16.45.

Venue: JK1.90, Roeterseilandcampus University of Amsterdam (Valckenierstraat 65-67, Amsterdam)

Participation is free. No registration required.


Dr. Steve Russell (School of International Development, University of East Anglia, United Kingdom) is a social scientist with 16 years research experience on health and health policy-related issues, and on related questions of poverty, livelihoods, and policy implementation. His recent research focuses on social aspects of HIV and AIDS, and in particular people’s management of HIV as a chronic condition when taking antiretroviral therapy (ART). Using social and psychological frameworks, the research examines people’s adaptive strategies, their self-management, their work to rebuild lives and livelihoods, and to regain order and control.


Dr. Sumit Kane (KIT Royal Tropical Institute, Amsterdam) has worked as an HIV clinician in a major public hospital in Mumbai, India, a context where much of HIV related care was and remains a self-managed process. He currently works at KIT Royal Tropical Institute, Amsterdam where his research interests include trust relations in health services, and service provision experiences of frontline health workers.